Dr B

Dr B's secretary called this morning as she had a cancellation for Monday and Dr B needed to finish his 'assessment'. I explained that I am in the process of having physical tests done and that I was not able to come on Monday morning anyway due to other appointments

Unfortunately Dr B arrived 40 minutes after the appointment time and I had to attend an emergency hospital appointment which was made earlier in the day due to worsening attacks. The distance is a problem and has already been discussed with Dr B during the last consultation as I cannot force my father to take yet more time off work for an appointment that seems to have no interest in helping my physical situation. I told him that I could only come to Sevenoaks when I was able to drive there myself so I am a little confused why his secretary phoned to ask me to go there.

The consultation last week lasted for about 30 minutes once he had arrived and the focus of the appointment seemed to be about my family and how old they are, what they did, rather than my current, rather alarming, symptoms. When he arrived, we had shown him a couple of recordings and photos taken during a couple of the episodes and explained that the situation and consistency of the attacks had worsened yet I did not feel i could go to D** A&E so we remain at home. He was rather persistent in knowing what I thought it was, having said that I was waiting on tests he then asked again. I'm not sure if the aim of this was to gain a self diagnosis but I am unsure how I can guess at my current condition without having any current test results or the appropriate consultants advice to go on. He did seem interested from the point of hypermobility but the majority of the time was spent asking about my life rather than the situation I was currently in.

There was no mention of further diagnostic tests yet he said his role was to determine if the matter was 'organic' or not. I'm not sure how someone does that without being able to rule things out through diagnostic tests. I have received no more appointments or diagnostic tests through from D** since my first discharge and the last scan I had was after the second attack. No investigations have been done in the mean time.

The aftercare from D** seems to be a psychiatrist and a physiotherapist. The physiotherapist does not know what direction to take as the attacks happen so frequently and we are awaiting the results of private tests and consultations. The psychiatrist is unable to make his initial diagnosis based on a discussion and nothing further can be done until I am able to travel to Sevenoaks.