Welcome to my health blog. I am a 29 year old living with a range of strange and confusing medical symptoms and conditions including various functional/neurological disorders, Endometriosis, PCOS, Raynaud's Disease and seronegative Hughes Syndrome. This blog is to document my struggle with doctors and the impact these illnesses have on my life. I hope that in some small way, my experiences will give others who are in similar situations some sort of strength or some form of comfort. Thanks for visiting!

Some may question my choice of title but if you are ill constantly and seem to always have your brain on pain and discomfort that's making your life very difficult, you begin to feel that perhaps you are a hypochondriac or what's worse, that other people see you as one. Whether you are or not, you still feel pain, sadness, and dispair which brings me to this quote from Harry Potter and the Deathly Hallows by J.K. Rowling:

"Of course it is happening inside your head, Harry, but why on earth should that mean that it is not real?" - Albus Dumbledore

Monday, 20 February 2012

D Phonecall

SC has called from D**,

It was a rather stressful phonecall and I already feel my heart banging and my face feels really hot. She tried to explain the hospitals position as far as she could but unfortunately only had the discharge letters to go by and no other medical documentation. She only agreed that the vasculitic screen was ambiguous but strongly fought against the confusion with the echocardiogram and stated that there was no way that the structure of the sentence could be the source of any confusion.

I've explained to her that as a result of the treatment I recieved from D** I will not be calling an abulance which would take me to D** regardless of the severity of the attack as it was felt there was no interest from D** doctors to investigate this further. She did say that I shouldn't feel that way and it was wrong to put myself at personal risk, however I do not trust these people or believe they wish to do anything further to help me. I do not believe any further communication via telephone would be of any use.
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