Probably stupid of me but earlier I wrote a teenie post on FB about being tired of being broken all the time. Although the virtual hug comments were all very lovely and much appreciated, it doesn't really make them a real hug. Wish I could have a really big hug.. one where I could hide and all the bad things would go away. Anyway, I wrote a message back to an e-friend and I guess it covers what I'm feeling right now.
Thanks for the mail. Yeah you're right but it's not that I'm pissed off, it's that I'm sad. I hate my life right now, I'm tired of being in pain or ill all the time. I'm tired of being a horrible burden on the people I love, having no independence and everything is a struggle. I'm totally disconnected from my friends and sisters. The whole world keeps turning and I'm stuck still wallowing in self pity even though it's more like sadness and frustration. I'm tired. I feel guilty for moaning about it as there's nothing I can do and.. Oh I don't know. I just want some of my life back. The last few days I've had the other condition i suffer with (for years) come back quite badly. If something was fixable then maybe I would feel happier.. but nothing I have is. I'm just a defect wrapped in a normal looking person. Mostly I can put up with that but the last few days have been harder. I appreciate the hug.. thank you.
It's been a rough few days. Seems like any times I get the funny feelings in my chest my insides turn to water and the cramps come. Tonight wasn't so painful but it was very unpleasant. My heart seemed to.. tickle.. and then I felt quite sick and the cramps started.. then a rush to the loo. How pleasant.
Welcome to my health blog. I am a 29 year old living with a range of strange and confusing medical symptoms and conditions including various functional/neurological disorders, Endometriosis, PCOS, Raynaud's Disease and seronegative Hughes Syndrome. This blog is to document my struggle with doctors and the impact these illnesses have on my life. I hope that in some small way, my experiences will give others who are in similar situations some sort of strength or some form of comfort. Thanks for visiting!
Some may question my choice of title but if you are ill constantly and seem to always have your brain on pain and discomfort that's making your life very difficult, you begin to feel that perhaps you are a hypochondriac or what's worse, that other people see you as one. Whether you are or not, you still feel pain, sadness, and dispair which brings me to this quote from Harry Potter and the Deathly Hallows by J.K. Rowling:
"Of course it is happening inside your head, Harry, but why on earth should that mean that it is not real?" - Albus Dumbledore
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