Up until now the constant elements have been:
>Goose pimples/pins and needles down left side of body and legs.
>Very fast heart beat, yesterday and today it's been up at 130bpm.
>Discolouration in hands and feet; red/white.
>Feeling of lump in throat/loss of voice.
>Very very cold.
>Sudden weight gain.
>Frequent loss of coordination when typing and slow thinking/speaking.
>Loss of mobility in left foot
>Pain in left toe every day, Intermittent pain in specific parts of the leg.
>Nerve feeling/tightness in face/head.
>Face spasm left side, mostly after physical activity.
>Bubbling/burp or tickling in left side chest.
>When laying to sleep get a jolt in chest, pain in left side chest and a horrible cold feeling spreads all over body.
>Constant pulsing in stomach.
>Erratic circulation to feet and hands; red sploges, swelling.
Today (I think 15th attack)
Tonight I had a collapsing episode again at 6:30pm. I think I knew it was coming. I've been up since 8:00am and been feeling strange all day. We took the car for its MOT and driving it was not pleasant. I still cannot feel or move my left foot properly, which makes clutch control difficult, but it's over with now. Trying to bend the toes makes them flinch or shake. Throughout the day I've noticed that I've had trouble thinking and my coordination when typing has been poor since last night. When I typed I thought I was using the correct letters but only a jumble was coming out. It's so frustrating! All through the day I've had pins and needles down the left side and
At about 5:30pm I felt a little giddy and knew something wasn't quite right. Went inside, we ate dinner and I stood up to talk to my dad about something on his phone. As I was standing there I began finding it harder to listen and felt myself zoning out. Then swayed and felt myself go. Grabbed onto my dad this time to prevent falling and stayed there. My legs started to shake violently and they felt so so heavy, like they weren't my own. My parents then helped my into the living room. Trying to move my legs was like trying to walk with led boots on. It's now 5 hours later and its a little better. I've shot a video of me trying to walk at the moment, maybe it won't show very well but we'll see. I just can't... feel them properly. It seems to be the case that if I try to do any 'normal' physical activity (I washed the car yesterday) the attacks come soon after.
Over the last few hours I've been sitting quietly and was watching a movie. As soon as my parents got me into the living room my face started the pull to the side and composing a sentence in my head and speaking it was very very difficult. When I try to speak I sound like someone with special needs. I don't really understand how I'm meant to deal with this. If my dad hadn't have been there I'd have been on the floor again, unable to move myself for some time. It's scary. Is it normal for a 26 year old to collapse three or four times at home in one the space of 2 months and have no treatment? I feel like 'because I am young' it's not of much concern. I don't know what I'm meant to do and it's scary.
A friend called me near the end of the film I was watching. At first it was hard to speak with him as it was hard for me to think and construct sentences. For a short while it was then pretty normal and about 5 minutes later, my face and tongue had been pulled to the side and I could barely speak through the slurring so we had to hang up. The pins and needles keep washing down one side of my body every few minutes.. or are they goose pimples, I don't know. Finding words for everything is hard. My heart has been thumping and tonight it's been 'tickling' and gurgling in the left side of my chest.. I assume that means palpitations? My face was boiling hot, I feel so much pressure in my head and my tinnitus is going so so loud. The rest of my body is absolutely freezing. I've been wearing a winter coat all day.
Sleeping is very hard, most nights I have to sit up and just wait until I fall asleep. If I lay down I often get pain in my chest on the left side. As I drift off I get a jolt in my chest and a horrible feeling spreads right down my body. That happens 1-4 times a night. I wake up sometimes in the night and can't feel my limbs properly.
The 'lump in throat' feeling still comes up and down 3 to 4 times a day and when it's up I can't talk at all (unless I put my chin to my right shoulder) which makes things, difficult. It's like I have some sort of balloon in my neck.
Anyway I'm going to add some images in here before I forget.
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| 5th Mar 2012: Right hand cold, left hand swollen and hot. |
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| 7th Mar 2012: Left hand feels swollen and warm, right hand cold. |
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| Sharp pains in leg, slight swelling of kneecap area on standing - 24th Feb 2012 |
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| Colour comparison - 3rd Mar 2012. |
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| Red and white patches - 10th Mar 2012. |
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| Mysterious purple travelling patch. Foot, knee and hand - 11th Mar 2012. |
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| Random head pressure/hot flushes in head - 8th Feb 2012. |
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| One of the 'worse' attacks (home). Face spasm. Loss of mobility face/body - 11th Feb 2012. |
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| Red patch in foot - 19th March 2012. |
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| Colour of foot in the bath, comparison to 'warm' hand - 13th Feb 2012. |
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| Hand discolouration (filtered) - 2nd Mar 2012. |
That's all for now I think.. Far too tired!
*Edit*
Also found this, it's from 20th February but I dont think I posted it in here:
"Another scary night! Earlier today my sister had come to visit and we braved having a wander around Bluewater. At the time it was slightly tiring and my chest was feeling 'funny' or 'tight' for most of the trip, I'd not been out, aside from hospital visits, in such a long time and had missed seeing my sister so much. I think there has only been one other trip out to eat since the first attack. It all began at about 5:30pm. I'd been telling my sister about the way I take pictures and we were sat in my room quietly editing a few shots from our phones. I'd suddenly got some stomach cramps, went to the toilet and on coming back into the room I felt something was wrong. It was as if someone had turned my thougts off, it was so quiet, I could hear my sister talking but I couldn't really formulate any type of response. Waves of nausea became apparent and so I grabbed the bin.. just to be safe. I started to get the familiar small pulsing pain in the one spot on the side of my head. For some reason a couple of tears came from my eyes, but I was not crying! The nerves in my face seemed to start pulling and the bubbling in my chest started along with the 'feeling' of movement through my neck and up into my head. The numbness/loss of sensitivity in my cheeks has seemingly spread to all over my face, except for around my eyes and nose. Breathing was once again feeling...wrong. The closest thing I can describe this as is if you are trying to drink a fizzy drink through a straw with a hole in it. I opened my mouth to speak to my sister but the words just wouldn't come out. My face wasn't drooped, yet, but all my words were slow and slurred. Got up and the legs, once again, had seemingly decided to not really co-operate, however, we shifted base to downstairs so that I was in the room with my parents.
It's horrible to sit there and put your family through this, it really is. It's only afterwards the guilt hits though. It makes me sad that I can't fix things, I can't control it and no one has seemed all that bothered that this is happening to someone in their mid twenties, except the most recent doctor.
Anyway, that's going off on a bit of a tangent. The symptoms worsened a little more with my whole left side turning into dead weight and I sort of slumped to the left in the chair and just turned into a zombie for a while, unable to form sentances or move. After a few hours it seemed to be over and I was glad this episode had not been worse. If anything, it was closer to resembling the initial attack than all the others but I managed to get back on my feet and wobble about, trying to walk.
Later this evening my heart began to thump really really fast after I'd come back up to my bedroom. It was alright until the breathing once again felt.. wrong. It's so hard to describe all these feelings inside.. all are strange and I feel its so important to convey the feeling with the correct word but in my case, I seem to fail at it rather well! Back downstairs to check my blood pressure - 129/76 120bpm (x3). No idea what the first numbers mean but all that fast thumping while sitting down didn't feel right at all. Again, the nausea came and then more nerve twitches, intermittent loss of voice and an intense dizziness. This is when it got..worrying. I literally had no control over what was happening inside me. Breathing was causing horrible feelings in my chest and what I assume to be my heart. I suppose there is less of a mental panic now though, it has happened so many times now that I hope it will not cause the worst to happen. Eventually the facial droop came which was a welcome relief as it seems to signify the tail end of an episode. I can only keep my fingers crossed and hope that two episodes today will mean none tomorrow!"
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