Welcome to my health blog. I am a 29 year old living with a range of strange and confusing medical symptoms and conditions including various functional/neurological disorders, Endometriosis, PCOS, Raynaud's Disease
and seronegative Hughes Syndrome. This blog is to document my struggle with doctors and the impact these illnesses have on my life. I hope that in some small way, my experiences will give others who are in similar situations some sort of strength or some form of comfort. Thanks for visiting!

Some may question my choice of title but if you are ill constantly and seem to always have your brain on pain and discomfort that's making your life very difficult, you begin to feel that perhaps you are a hypochondriac or what's worse, that other people see you as one. Whether you are or not, you still feel pain, sadness, and dispair which brings me to this quote from Harry Potter and the Deathly Hallows by J.K. Rowling:

"Of course it is happening inside your head, Harry, but why on earth should that mean that it is not real?" - Albus Dumbledore

Wednesday, 14 March 2012

Another long night..

Once again my chest has decided it's a bad idea for me to lay down. Everything seems to go all heavy, then there is a rush of a horrible feeling all over my body and pain  in the left side of my chest, just under the rib cage. At one point I was pretty sure my head was inflating as this pressure seemed to fill me. Seems like I'm just going to have to stay up until I can fall asleep sitting up.

I tried some really gentle yoga stretches today. Even though they were simple my body was shaking for a fair while afterwards. It was going okay until the left leg came into it. It seems to only be able to do minor things for a short while and then becomes a bit of a dead weight. Had it flop over to the opposite side (during a stretch lifting the leg with a dressing gown belt) and it just went down further and further and I couldn't pull it up. Felt the muscles protest and try to cramp but I got it back eventually. I'll attempt some more tomorrow and see if there is any improvement.

Zzzz so tired..

Saw Mr D (ENT) yesterday evening at the hospital. He said that had it only voice that was the issue then he would have tried harder but as it could be something overall that was causing a knock on effect to the neck then he trusts in the current neurologist to find out what is causing this. I understand his position so there really isn't much I can do about it. I'm still not really sure how something can show up on one scan and then not on the next. I guess I just have to hope and wait. He did try to explain about the measurments being made in a different way and emphasised that the MWH doctor was a specialist in carotid scanning and not for lumps in the throat. These doctors are so strange, depending on thier mood they seem to discount one medical opinion if it doesn't suit what they assume and blindly follow the advice of another radiologist who happens to be their favourite. Part of me wonders if there is a bit of a 'silly boys club' going on where they don't know what it is so they reccommend their mates so they can get a share in the 'we don't know' medical insurance consultation payments.

I am shocked that last night the doctor would have been paid a substantial amount of money to sit there for 5 minutes and tell me that "I have no answers for you". This isn't to say that the man was mean or a horrible doctor, he wasn't. I understand that this is not straight forward. Still, no wonder they drive such posh cars when they get paid for solving.... nothing.

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