Welcome to my health blog. I am a 29 year old living with a range of strange and confusing medical symptoms and conditions including various functional/neurological disorders, Endometriosis, PCOS, Raynaud's Disease and seronegative Hughes Syndrome. This blog is to document my struggle with doctors and the impact these illnesses have on my life. I hope that in some small way, my experiences will give others who are in similar situations some sort of strength or some form of comfort. Thanks for visiting!

Some may question my choice of title but if you are ill constantly and seem to always have your brain on pain and discomfort that's making your life very difficult, you begin to feel that perhaps you are a hypochondriac or what's worse, that other people see you as one. Whether you are or not, you still feel pain, sadness, and dispair which brings me to this quote from Harry Potter and the Deathly Hallows by J.K. Rowling:

"Of course it is happening inside your head, Harry, but why on earth should that mean that it is not real?" - Albus Dumbledore

Wednesday, 6 March 2013

Getting there!

Progress on this blog is slow.. very slow! I've spent a lot of the day thinking about FND and then a big chunk of it going over my previous conditions and trying to include everything that happened last year relating to the functional stuff. It's actually really stressful so I did some stuff to take my mind off it but yet just before going to bed my brain comes straight back to reading bits and still thinking what needs sorting out. The more I think over the situation the more I question everything. Especially after today's addition of nerve problems in a new place. I don't understand why but again it points straight to neuralgia and compression. I wish I didn't have to think about this stuff and that things would just be normal but how do I do that when I've got electric shocks zapping me. If there has been a mistake and there is nerve deterioration then at least I can try to help this before it gets any worse. All the functional stories that I've read have similar elements to my story and yet are very very different, the more I read the clearer this becomes. I guess me writing this shows the mental struggle to completely trust a diagnosis given to you by someone who know's nothing about you :/. Anyway, hopefully I'll have the 'about me' section done by tomorrow and then I don't have to think about that stuff for a while \o/.
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