Welcome to my health blog. I am a 29 year old living with a range of strange and confusing medical symptoms and conditions including various functional/neurological disorders, Endometriosis, PCOS, Raynaud's Disease and seronegative Hughes Syndrome. This blog is to document my struggle with doctors and the impact these illnesses have on my life. I hope that in some small way, my experiences will give others who are in similar situations some sort of strength or some form of comfort. Thanks for visiting!

Some may question my choice of title but if you are ill constantly and seem to always have your brain on pain and discomfort that's making your life very difficult, you begin to feel that perhaps you are a hypochondriac or what's worse, that other people see you as one. Whether you are or not, you still feel pain, sadness, and dispair which brings me to this quote from Harry Potter and the Deathly Hallows by J.K. Rowling:

"Of course it is happening inside your head, Harry, but why on earth should that mean that it is not real?" - Albus Dumbledore

Thursday, 14 June 2012

New Episode

It's been building for days. I've felt it gradually get worse.

Tonight's post might be disjointed as it's very hard for me to type at the moment. Hands aren't pressing the right keys.

Tonight it all got a bit worse. Noticed that on standing up I got my voice back but this resulted in numbness in my ankles. I've made a recording on my phone. Did my blood pressure and pulse. On standing pulse increased and blood pressure dropped. I have a strange feeling in my chest and feel breathless. My arms and hands are shakey. Memory not working, argh!

Started about 6pm.. Whole right side was feeling weak, Electric shocks in right foot and right had, only mild, then voilent hand shaking but could talk. Sat down, felt lump rise and pressure increase up my neck then lost voice again and wave of cold goes down legs. I've recorded this on my phone. When I stand my legs get weak, especially the right. On pressure it shakes voilently. Feet feel stone cold. Right has a tinge of blue/purple colour around the bump on the side. Pains in feet and legs (similar feeling to having injection to wrist) and now sitting at desk, Can feel the lump/pressure in neck but can half talk, memory is slow, right leg aching and breathless. Using walking stick. Don't feel very well at all. On laying down, horrible sensation in chest.

Oh and now I have upset tummy.. and my chest hurts, yey.
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