Welcome to my health blog. I am a 29 year old living with a range of strange and confusing medical symptoms and conditions including various functional/neurological disorders, Endometriosis, PCOS, Raynaud's Disease
and seronegative Hughes Syndrome. This blog is to document my struggle with doctors and the impact these illnesses have on my life. I hope that in some small way, my experiences will give others who are in similar situations some sort of strength or some form of comfort. Thanks for visiting!

Some may question my choice of title but if you are ill constantly and seem to always have your brain on pain and discomfort that's making your life very difficult, you begin to feel that perhaps you are a hypochondriac or what's worse, that other people see you as one. Whether you are or not, you still feel pain, sadness, and dispair which brings me to this quote from Harry Potter and the Deathly Hallows by J.K. Rowling:

"Of course it is happening inside your head, Harry, but why on earth should that mean that it is not real?" - Albus Dumbledore

Friday, 27 April 2012

The night.

Or should I say morning? It's just past 4am and I'm back to being propped up in bed. It's so silly but I just feel scared. The 'laying down horrible feeling' has noticeably increased over the last 2 nights especially tonight. My whole body actually flinched with the jolt in my chest. Heart is pounding.. feel like I've got vibrating bubbles doing through parts of my legs, it feels horrible. I wish I could just ignore it but its stopping me from sleeping. Hopefully soon I'll just be so tired that I'll doze off sitting up.

I spoke with LBH last week as they called up about an appointment. The only drawback is that the next available appointment is (privately) in August. Apparently he's the best person to see so it will be worth the wait. The lady on the phone said that usually the case would be delegated to other members of his team but because my case is as it is, he wants to see me himself. I just wish I knew what to do in the mean time because I'm beginning to worry that it's building again. What do I do about work? I have no idea what's going on and there is no one at the moment that is going to make any difference as it all hinges on the August appointment. I think its clear to me that I can't smoke because it seems I go a bit strange close'ish to when I've had one. It's all so frustrating and I wish this bloody tinitus would shut up!

27th:
Loss of voice (24hs ish).
Pains in knees, legs, feet, hands, back.
Consistent pain on inhale/exhale ribcage and in upper back after laying.
Cold!
Strange circulation.
Problems laying down - horrible feeling.
Feeling of tongue swelling.
Patches of forgetfulness.

28th - 29th:
Worse problems on laying down - cannot sleep laying.
Pain in feet, back, ribs, legs and hands/fingers - seems to be getting worse.
Tired and cold.
Intermittent voice throughout day (voice seems to go when cold?).
Ache and sore.
Pins and needles in left toe (morning).
Dizzy.. headache.

I'm getting to tired to even think more at the moment..


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